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Qumar and I have entered the Manchester marathon and if any good can come of this, it would be great if the Smith-Magenis Syndrome Foundation UK got it.
Inspired by my godson, Harry Donohue, 6, who at 18 months old, was diagnosed with the rare genetic Smith-Magenis Syndrome. At first information was difficult to obtain until his parents discovered the Smith-Magenis Syndrome Foundation UK, who welcomed them into their community of families and have offered support ever since.
The Smith-Magenis Syndrome Foundation UK provides vital support to individuals and families affected by the condition, as well as raising awareness in the wider community. The foundation is relatively small and funded through charity fundraising efforts such as this.
Any money will be greatly appreciated.