Jordan Withers

London Marathon for Action for A-T

Fundraising for Action for A-T
£3,185
raised of £2,000 target
Donations cannot currently be made to this page
Event: London Marathon 2023, on 23 April 2023
London Marathon 2023
Campaign by Action for A-T (RCN 1145303)
All Action for A-T runners taking part in the 2023 London Marathon

Story

I have decided to run the London Marathon on the 23rd April 2023 in aid of a wonderful charity, Action for A-T, after being inspired by both my beautiful nieces, Hattie (9) and Violet (6) who are living with this condition.

What is Ataxia-Telangiectasia?

Ataxia-Telangiectasia (A-T) is a rare and complex childhood disease that affects the nervous system, immune system and a variety of other systems in the body. Ataxia, or loss of coordination, is normally the first and most obvious sign that a child has A-T. Children when they start to sit and stand up may appear clumsy or wobbly, often swaying from side to side when sitting or standing. This doesn’t usually affect their learning to walk, but they will usually be unsteady on their feet. The coordination problems will soon start to affect speech, making it hard to pronounce words. Over time also eating and swallowing are also affected, as these require considerable muscle coordination. It also affects eye-movements, though vision itself is unaffected, impacting activities like reading. A-T is also characterised by Telangiectasia, where widened "spider" like veins often appear in the corner of the eyes. 

There is currently no cure for A-T and no treatments to slow down or stop the progression of this devastating disease.

Why Action for A-T?

Action for A-T was established in 2012 to provide support to the wider A-T community and speed up the process of identifying a cure or treatments that delay or prevent the effects of Ataxia Telangiectasia. Action for A-T provides support and funds high quality peer reviewed medical researchSince 2012, Action for A-T have invested more than £4,000,000 in 46 A-T related research projects which offer hope to the families living with this devastating condition. For more information please visit https://actionforat.org 

How can you help?

I would be eternally grateful to anyone who is able to support Action for A-T by raising awareness and making a donation, no matter how big or small, as every penny counts. 

Thank you so much and do wish me luck !

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About the campaign

All Action for A-T runners taking part in the 2023 London Marathon

About the charity

Action for A-T

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RCN 1145303
Action for A-T raises money for medical research to find a cure or medical advancement that will enable children who suffer with Ataxia Telangiectasia (A-T) to live a longer and healthier life. Please visit our website at https://actionforAT.org for more information.

Donation summary

Total raised
£3,184.58
+ £682.50 Gift Aid
Online donations
£3,184.58
Offline donations
£0.00

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