Jonathan Scripps

Jonathan's Journey Through Performance & Friends Concert page

Fundraising for The Maddi Foundation
£70
raised of £500 target
Donations cannot currently be made to this page
Journey Through Performance & Friends Concert, 14 August 2021
The Maddi Foundation

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RCN 1174374
We raise funds for SPG15 medical research to find a cure for this rare disease

Story

On the 14th August in Jubilee Gardens, Saffron Walden, I have put together a group of local talented performers for a one off variety show to help raise money for the Maddi Foundation.

Maddi is an incredibly brave girl who was diagnosed with a life limiting genetic disease called Hereditary Spastic Paraplegia 15 (SPG15).

We shall be taking donations on the day, however if you can’t make it and would like to donate please donate via this page.

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About the charity

The Maddi Foundation

Verified by JustGiving

RCN 1174374
The Maddi Foundation is a non profit charity which was founded by the family of a young teenage girl “Maddi” who in 2016 was diagnosed and started battling Spastic Paraplegia Type 15 (SPG15), a degenerative neuro disease. Symptoms present themselves generally in early teens causing paralysis in the limbs with progressive brain abnormalities resulting in loss of nerve cells, visual impairment and possible juvenile Parkinson's. This is a genetic type of motor neuron disease. To date there is no cure or treatment! Conditions this rare receive very little attention and funding so with your help we can try to change this so our children can have a brighter future. The Maddi Foundation aims to continue to support medical research to help cure this disease and also help other similar rare diseases.

Donation summary

Total raised
£70.00
+ £10.00 Gift Aid
Online donations
£70.00
Offline donations
£0.00

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