Why I am doing this:

I am doing this to raise funds and awareness for UK based charity, Cure DM, that supports families affected by Myotonic Dystrophy and raises awareness for a disease where there is so little knowledge. 

Why this is so personal for me:

Our Daughter Daisy was born with 'Congenital Myotonic Dystrophy'. Since her birth many members of my Partner Tamsyn's family, including Tamsyn have been diagnosed with Myotonic Dystrophy.

What is (Congenital) Myotonic Dystrophy?

The genetic muscle disease affects every part of the body's functioning ability. It affects everything from the heart, vision, brain to general movement. The degenerative nature of the condition means it worsens with age.

Why this charity needs your money:

It is a very rare condition, but rarer still is the knowledge or awareness of it, with even GP's and medical professionals rarely ever recognising the condition. That is why it's so critical that we raise funds to help raise the diseases profile, support families and apply pressure on those in the medical/science industry to find a cure or treatment, for which there is so far none.

Every penny counts towards this mission and I am so grateful for every like, share and donation. Thank you.