Jo Rayner
The Rayner family's page
Fundraising for CdLS Foundation UK & Ireland
Story
Hello,
On the 28th April 2019 I will be running ( well walking quickly ) the London Marathon for CdLS foundation UK, alongside ( well probably lagging behind ) my beautiful & courageous sister in law Kimi.
I had never heard of CDLS ( Cornelia de Lange syndrome) until my Brother & his wife Kimi, were told their son & my nephew may be affected with it at the beginning of this year. Luckily Ollie seems to only have a milder form of CDLS and will hopefully in time reach the usual mile stones that you would expect, walking, talking etc. Unfortunately many children are affected much more severely and will not meet these mile stones.
The CDLS foundation is run solely by volunteers including parents & professionals. They offer help & support to families like mine affected by CdLS.
CDLS is a rare genetic disorder & the foundation is only small. Please donate whatever you can to help them do the research so desperately needed.
Thank you. Jo. Xx
Thanks for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.
On the 28th April 2019 I will be running ( well walking quickly ) the London Marathon for CdLS foundation UK, alongside ( well probably lagging behind ) my beautiful & courageous sister in law Kimi.
I had never heard of CDLS ( Cornelia de Lange syndrome) until my Brother & his wife Kimi, were told their son & my nephew may be affected with it at the beginning of this year. Luckily Ollie seems to only have a milder form of CDLS and will hopefully in time reach the usual mile stones that you would expect, walking, talking etc. Unfortunately many children are affected much more severely and will not meet these mile stones.
The CDLS foundation is run solely by volunteers including parents & professionals. They offer help & support to families like mine affected by CdLS.
CDLS is a rare genetic disorder & the foundation is only small. Please donate whatever you can to help them do the research so desperately needed.
Thank you. Jo. Xx
Thanks for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.
