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My granddaughter Emma was diagnosed with Rett Syndrome as a toddler, meaning she cannot walk and is locked in a body which does not obey signals from her brain.

Rett Syndrome affects girls around the age of 12-18 months. It is estimated to happen to 1 in 10,000 children, and is rarely found in males. Children with Rett are unable to walk or use their hands, and often deal with breathing problems, feeding tubes, seizures, anxiety, gastrointestinal and orthopaedic issues.

Research has shown children with Rett Syndrome have no brain damage, and they understand more than their bodies allow them to show.

Researchers from Edinburgh University are working towards a cure for Rett Syndrome, by using genetic engineering to replace a missing protein. 

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