We fund care, campaigning and research to achieve a world free from MND
Story
32,vines Lane, Droitwich, Worcestershire WR98LT
Let’s share the love ❤️ ❤️❤️
On average 1500 people will be diagnosed with MND this year in the UK.
In 2014 I took part in the ice bucket challenge and as we all did, I donated my money to MND. I had never heard of MND and to be completely honest I didn’t check what it was.
Who would of thought 3 years after this my life and the lifes of my family would change for ever.
So what is MND (Motor Neuron disease)?
Let me tell you my journey.
My name is John Adams also known as the MND Warrior and by my family and friends Sir John 🤣
I started having regular falls, which I couldn’t understand why, as i was a very fit man who loved his gardening and had two allotments. I used to supply vegetables to all my family and friends.
I never spent a day indoors - come rain or shine I was doing something. So then the tests start and then you get told you have MND. My family were told my life expectancy was 12 to 18 months.
What next ?
Well…I started slurring my words and couldn’t understand why people kept asking me to repeat myself. I always liked to be the chap that had a quick witty answer to everything. But when my voice started to go, this impacted on my life significantly.
I loved a drink. Yes, I admit I went to the pub everyday and loved either a glass of cider or a nice red wine. This was taken away from me after choking on many occasions. I was told I needed a peg fitted so I am now fed through a tube.
My campaigning
After getting diagnosed I decided to dedicate every day I was blessed with, to work hard to promote awareness of this devastating disease and to raise funds to find a cure.
I appreciate a cure will never be found in my lifetime but I can still do my bit to ensure no one suffers in the future .
Since starting my campaign I have raised nearly 22K for research.
However the most inspiring part of my journey is the people who have contacted me saying my story has given them strength to keep fighting.
My challenges have gained lots of media coverage which I am extremely grateful for.
The MND Association focuses on improving access to care, research and campaigning for those living with or affected by MND in England, Wales and Northern Ireland. If you or a loved one need practical or emotional support, call our Connect Helpline on 0808 802 6262, Mon to Fri between 9am and 4pm.