Update - we have been blessed with our beautiful daughter Ellie on 29/02/2016 a leap year baby. When Ellie was born she was rushed almost immediately for surgery to insert a shunt and close the opening on her back due to severe Hydrocephalus which we did not expect. Ellie is an amazing, resilient and beautiful daughter and she has already overcome so many challenges and was allowed home with us on day 15. Ellie struggles with breathing which unfortunatley is more serious than we first thought but we are all taking each day as it comes and are so thankful for the love and support everyone has shown. Thank you for all of the donations and the awareness which has been raised all in aid of our beautiful daughter Ellie who at this time is only 24 days old :)

My wife and I have just been introduced to the world of Spina Bifida with our current pregnancy. This is something which was unknown to us prior to our personal experience and now we would like to create awareness and raise money for the charity, SHINE. With the help and support of our friends and family who have kindly supported us through our journey many of us will be taking part in the marathon ranging from the full marathon, the 8 mile walk and the relay to raise money and awareness of this condition.

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