Anglemans syndrome (AS) is a rare neurogenetic disorder that affects approximately one in 15,000 people. Children and adults with AS typically have balance issues, motor impairment, severe sleep disturbances and debilitating seizures, with many never walking and unable to speak, requiring continuous care.

My best friends little girl, Neave was diagnosed with AS. Despite the statistics she is now walking independently, becoming increasingly communicative and has the most incredible beautiful smile! She’s just amazing. But of course she and all the other angels deserve the opportunities that every other child has and unlike many other neurological conditions, hope is here with research. Scientists believe that AS has the greatest potential for being cured and FAST  has the goal of bringing life-changing treatments for AS to clinical trial within two years and support the next critical phase of research involving gene therapy.  FAST is the largest non-governmental funder of Angelman syndrome research so of course it needs funding to support this goal. 

FAST UK is an organisation of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education and advocacy. The Foundation is committed to raising awareness as well as assisting individuals to realise their full potential and quality of life. We are confident that our goals are within reach and together, with your help, we will change lives

It really is an incredible charity with such hope for the future.

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