Where do I start.. one of my first meteorites from school was being told off but feeling so ill and confused, sitting there wondering why I was actually being told off when I hadn’t said anything, that was a seizure, an abcense.

When I was finally diagnosed at the age of 9, I was instantly isolated, I went from being a normal child to being the odd one out, not allowed to go swimming, ride a bike, all of my friends were scared, that’s how it was back then and unfortunately that’s how it still can be for some:

As I became older so I started suffering more forms of epilepsy and was told that it would never leave me and that even pregnancy was a trigger for me, so I was advised to have no more children too.

Over the years I have lost 2 family members &  3 friends to Epilepsy (some of them had children and one was under 30)

A lot of people don’t even know that Epilepsy can kill, that’s how little is known about it and some just think it’s a person having a granmal when you fall to the floor, they don’t realise there are hundreds of types of it.

As the years progressed so my Epilepsy became worse, all the doctors could say was that they had no idea what was causing it, I was given every test they could think of, try to imagine being 9 years old and having a light brighter than a torch put in fromt of your eyes flashing! It’s happened to me more times than I can count. They conducted every test but all they could do is keep changing my medication.

Then in 2014 I was sent to Queen St, in London, the doctors there asked me to go to the Epilepsy Society in Chalfont where they could conduct some newer tests to see if they could find out anything new, nothing new should up, so they reviewed everything from the beginning of my diagnosis.

They came to the conclusion that I am pharmaco-resistant, which means that they cannot control my Epilepsy, when a new tablet comes onto the market I’m generally put on it immediately, they asked me to consider a VNS (Vagal Nerve Stimulator) surgery, it’s like a pacemaker, but it has a copper wire, which runs through my chest into my throat alongside my larynx and attaches to the Vagal Nerve at the bottom of my brain. This can never be removed, it sends off electric impulses every 5 minutes and because it runs alongside my Larynx it affects my voice, I can never go into an MRI scanner again as it will kill me because of the copper wire.

Although having this I still have to take medication and am still not controlled, they have said they do not believe they will ever be able to control my epilepsy as being pharmacy-resistant means my body rejects every medication I am given, that’s why I am put on new medication as it comes out as I have been on every epilepsy medication there is to date.

So little is known about this condition, next time your in your doctors have a look at the posters, you won’t see one about Epilepsy. It’s an invisible illness and the doctors will never fully unstand it as it is a brain disorder, if the doctors will never fully understand then the public will. But..we can help raise awareness and help the doctors to understand more and do it Moreno quickly. By donating on this page your not just supporting me, your supporting the ones I’ve lost to this, the people I know who suffer this and the doctors who work tirelessly to try to understand and control people who suffer it. 

Yes I am asking you to donate and yes these are hard times for many people, but imagine if someone you loved or knew started suffering and you knew nothing! You would hope the doctors could do or tell you about it all...I’m not going to ask for a huge donation and every penny goes straight to the Epilepsy Society in Chalfont, I’m not even setting myself a limit because myself and Chalfont will be grateful for every penny raised, so please please please find it in your heart to donate, even if it’s just £1, that £1 can make a difference and help save a loved ones life. Thank you all 

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