JJ’s Story:

Three year old JJ from Tullylish lives with his mum, Susie, dad, Vincent and big sister Evie.

JJ has cerebral palsy and life limiting disabilities caused by brain injuries during a complicated birth. As a result, JJ needs 24 hour care for all his personal and medical needs.

A word from JJ’s family:

JJ had a traumatic birth and suffered brain injuries because of a lack of oxygen. He was taken to the neonatal intensive care unit after birth and we were told that he would not survive. JJ kept fighting and after 2 months in intensive care we brought him home.

JJ’s brain injuries were severe and as a result he is not able to walk or talk and will never have the life we would have hoped for him but he is a joy and amazes us every day with his strength and resilience. He had his third birthday in February and we could not be more proud of our little Super Hero.

Coming to terms with what happened to JJ has been difficult and it is a very steep learning curve when your child has complex medical needs but NI Children’s Hospice have been by our side from the start. Along with our amazing community nursing team the hospice provided a light in the dark when we really needed it.

The family support and family events held by the hospice give us a chance to meet families on a similar journey and we have met some amazing people.

The Hospice’s respite facility Horizon House has been hugely significant for us as a family. Horizon House has such a warm atmosphere and is a true haven. It is impossible to overstate the warmth and kindness of the hospice staff. Our daughter, Evie, calls it the Holiday House and JJ gets so well cared for he sleeps for a full day when he gets home. Caring for a child with complex medical needs can be challenging and it means so much to be able to take a short break knowing that JJ is safe and being so well cared for in a place he knows.

We are so grateful for the support we have received from NI Children’s Hospice and would like to give back to this amazing organisation which helps so many families across Northern Ireland.

About the Walk:

The challenge we have set ourselves is to walk the 100 miles from Croke Park the home of Gaelic games, to the home of Tullylish GAA (Vincent and JJs Club) over three days starting on Friday the 3rd of Sept from Croke Park, finishing on the Sunday 5th of Sept at Tullylish GAC. We are going to take a longer, more scenic route along the east coast to avail of quieter roads…and find out how successful our training has been! We want to raise as much as possible so everyone that takes part is being asked to raise £250 in sponsorship.

Just £37.25 could pay for an hour of specialist palliative nursing care for child with a
progressive or genetic condition, £74.50 could pay for two hours of support for a
family whose child has been diagnosed with a life-limiting condition and a donation
of £279.86 could pay for a day of specialist nursing support for children and their family in their own home.

All the money raised from JJs Walk will go to help Northern Ireland Children’s Hospice continue to provide much needed specialist care to local children and their families, living with life-limiting or life-threatening illnesses.

Who is taking part:

Vincent Doran (JJs Dad)

Shane O'Hanlon

Gavin McEvoy

Adrian Woolsey

Simon Cahill

Andrew Hanna

Christopher O'Carroll

Jonathan Quinn

John McGrane

Paul McGrane

Gary Chambers

Philip Grew

John McKinley

John McCusker

Colin McNally

Jamie Ramsey

Jarlath Quinn

Ronan O'Reilly

Garrett O'Reilly

Mark McEvoy

John O'Neill

Paul Brady

Martin Fitzsimmons 

Dara Gallagher

Dermot O'Hanlon