Story
I knew little of M.E until 6 years ago when my strong, active, full of life, ECP sister was diagnosed with it..... from that time, sadly her condition has worsened and she has now been bedridden 24/7 for over 3 years. She has a son and had a fantastic career in the NHS, many hobbies including climbing, mountain biking, swimming, running, sailing, snow boarding etc etc but was just unable to carry on with any of her normal activity or being an active mother. Her batteries would just no longer charge...... In May we usually are involved in a day to raise awareness for M.E but this cannot happen physically now, so, following a friend's plan, I am also going to attempt to run 50km in 1 month (sometimes this may be a jog or even walk) but compared to my activity levels now, this is a massive task for me to complete. I did a test jog this morning of less than 1km (1st one in about 5yrs) and haven't died so although I may struggle to walk the next few days, I'm gonna do it! I am a key worker so doing this in my spare time and live in a rural area, with few people about, but will be running early in the morning or later at night to respect social distancing rules. If you feel able, only those that can afford this please (as times are incredibly tough for many), any donation would be incredibly welcomed. Thanks for any awareness or support you can offer at this time. Much love, Jess xxx
"....doctors do not treat us and science does not study us. How could a disease this common and this devastating have been forgotten by medicine?" Jennifer Brea. ME Research UK believes that only biomedical research can find the causes of ME/CFS, improve diagnosis and treatment, and, ultimately, arrive at a cure. That’s why research is our focus. We've awarded 48 grants since 2000 and invested over £1.5million. But research is expensive and becoming more so every day. That’s the challenge we face, and that’s why we need your help.