Jessica and Nick's sponsored cycle from Calais to Amsterdam

Jessica Herbert is raising money for Cystic Fibrosis Trust

Participants: Nick Herbert

£3,651
raised of £3,000 target
Donations cannot currently be made to this page

Calais to Amsterdam via Bruges · 9 March 2023

Cystic Fibrosis Trust

Verified by JustGiving

RCN 1079049 (England and Wales) & SC040196 (Scotland)
We fund vital research to ensure effective treatments for all.

Story

We are taking on our 2nd sponsored cycle for the Cystic Fibrosis trust. 5 years ago this summer, we completed the route of London to Paris and raised over £3000.

The previous challenge was tough. However, it was unforgettable and extremely rewarding. Since the moment we arrived home, we have been eager to set off again.

5 years down the line, this June, we are starting in Calais, ending in Amsterdam and making a whistle stop tour of Bruges, whilst en route.

For obvious reasons to most, we are sticking with The Cystic Fibrosis Trust as our chosen charity. 

Cystic fibrosis (CF) is a genetic condition which causes sticky mucus to build up in the lungs and digestive system. It affects more than 10,800 people in the UK. One in 25 of us carries the faulty gene that causes it, usually without knowing. Cystic fibrosis comes with challenges, affecting our physical health, mental wellbeing and how we choose to live our lives. But our community is uniting towards the ultimate goal of effective treatment for all. Cystic Fibrosis Trust is the charity uniting people to stop cystic fibrosis.

During the past few years, an outstanding new drug, called Kaftrio has been released and offered to many cystic fibrosis patients. This has been life changing on so many levels.

We are over the moon to have witnessed Matilda (my sister & dads daughter!!) become able to do not only the simple daily tasks that we take for granted, but also watch her push beyond that with her fitness and her life in general.

Although, having said that, by no means is her life now anywhere near to being 'normal'. She still undergoes all the physio, tablets, bugs, worries & challenges as before and it is still a life threatening condition. This drug is not a cure and we do not know the long term success. But we can hope and pray that it continues to make miracles happen.

Unfortunately, not every cystic fibrosis patient has been given this opportunity, due to different mutations needing different strains of the drugs and also different places in the world having different healthcare systems, which simply cannot afford this drug. 

We would love to raise as much money as possible, in order to help the trust continue their work to be able to create these drugs and be able to offer it to more patients, so they can experience this wonderful opportunity too.

Please read, share & donate! 

Thank you in advance,

Jess & Nick

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About the charity

Cystic Fibrosis Trust

Verified by JustGiving

RCN 1079049 (England and Wales) & SC040196 (Scotland)
Cystic fibrosis (CF) is a life-shortening genetic condition that slowly destroys the lungs and digestive system. The Cystic Fibrosis Trust is the only UK-wide charity fighting for a life unlimited, when everyone living with CF can look forward to a long, healthy life. www.cysticfibrosis.org.uk

Donation summary

Total
£3,650.60
+ £617.00 Gift Aid
Online
£3,650.60
Offline
£0.00

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