Jessica Hallybone

Jess' Bewl Triathlon page

Fundraising for Reverse Rett
£630
raised of £850 target
Donations cannot currently be made to this page
Bewl Triathlon, 4 August 2018
Reverse Rett

Verified by JustGiving

RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

I've been a little quiet on the fundraising front, so I thought it was time to get fit and do something about it!

Despite saying 'I'm never doing that *adds a swear word* distance again', I've booked a spot in the Bewl Water olympic distance triathlon....1500m swim - 40k bike - 10k run... on Sunday 5th August. (Nice and hot!)

And of course, I'm doing it for my little friend Lily, who is now 6 years old, and is still suffering from the effects of Rett Syndrome. 

Any money donated will go straight to Reverse Rett, who continue to help families affected by the life restricting Rett Syndrome, and who are working hard to speed treatments and find a cure. 

Rett Syndrome is a neurological or brain disorder which affects apparently healthy little girls around the age of 6-18 months. The condition usually follows a path of progression where skills, such as speech, hand use, and mobility, are lost. Most girls do not speak at all. Some have a few words. Some are left with some hand use. And some girls never walk.

So please dig deep and donate a few pounds. Or at least come and watch, and laugh at me in my tri suit...

Thanks for taking the time to visit my JustGiving page.

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About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£630.00
+ £140.00 Gift Aid
Online donations
£630.00
Offline donations
£0.00

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