In 2019 our daughter set up the Liz Clarke-Saul Fund for Adamantinoma Research with the Bone Cancer Research Trust. She did this following her diagnosis of a return of the very rare bone cancer, Adamantinoma*, that had resulted in her losing her leg in 2003 at the age of 14. Since then the fund has received a phenomenal amount of support, and has raised enough money to kickstart not one but two research projects into this very rare form of bone cancer. In Liz’s words, “I want to change the landscape of Adamantinoma for patients in the future so that another me, in however many years time, won’t be sat down by their oncologist and be told that there is nothing they can do.” Our dear Elizabeth died in July 2020 two years after her cancer returned, affecting her ribs, lungs and spine. She always wanted there to be hope for Adamantinoma patients in the future and we believe that the new research projects will be the first step towards making Liz’s wish a reality.

Elizabeth was an international para-cyclist, riding as part of the GB para-cycling team and proudly representing her country at world-class events. So it seems right that my own contribution to raising some money for her fund should be in the form of a bike ride. On 10th April 2022 I'll be riding the Brighton BM Ride event over 50km around the streets of Brighton and Hove. I know 50km would have only just classified as a training ride for Liz, but I am a lot older than her and have never ridden this far before so it might be quite a challenge to do it inside the time!

Please donate however much, or little, you can to support this ground-breaking research into a very rare cancer.

Thank you.

* Adamantinoma is incredibly rare - it accounts for less than 1% of all bone cancers, and bone cancers account for less than 1% of all new cancer diagnoses in the UK. Because it’s so rare very little, if any, funding is assigned specifically for it but we want to change that through raising awareness and funding research into the condition.