I have joined the challenge to spread awareness and raise funds for Ehlers-Danlos syndromes May Awareness Month. Please support me by donating to my fundraising page. Together, even a small amount can make a huge difference!

I was diagnosed with EDS in 2016 after a 2 year search for answers (and I was one of the lucky ones) my body was failing me and I had no idea what was going on. After being diagnosed there was very little help available. So many people with EDS are discharged because 'There is nothing you can do for EDS' and whilst there is no cure there is so much that can be done. I started my youtube channel in 2017 to help other people living with EDS & raise awareness for the condition. Every year I have done annual videos for EDS awareness month and this year I want to make them bigger than ever. Last year I included 23 people from 4 countries with 3 types of EDS and I'd love to improve on that this year. so that is my challenge. It would mean so much if you could support us by watching the videos at youtube.com/c/chronicallyjenni and sharing them and then donating whatever you can to the EDS society to help improve the lives of patients all over the world and support research to hopefully find the gene responsible for hypermobile EDS. Thank You!

The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that can effect multiple systems of the body. Symptoms that are often seen across all types are hypermobile joints, (that can move farther than normal), stretchy skin, & fragile tissues. Each case is unique and severity may range dramatically, even within families.The Ehlers-Danlos Society is a global community dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, & related conditions. Our goal is world-wide awareness and better quality of life for all who suffer from these conditions, regardless of geography.