Thanks for taking the time to visit my JustGiving page.

In 2010 our good Friend Ian passed away aged just 31. Ian suffered from a condition called Primary Ciliary Dyskinesia (PCD), although you would never had known as he lived his life to the full and never once let it stop him doing anything.

When I found out I was lucky enough to get into the London Marathon I wanted to raise money for a charity that meant something to me and the PCD Family Support Group provide support to patients and their carers who have, or are suspected of having PCD. They bring PCD to the attention of medics who may come across PCD and continue to provide an up to date information service for them and the general public. They promote research to aid diagnosis and treatment of patients with PCD and support the NHS and other bodies to ensure patients have access to diagnostic services and on-going care