Running 376.7 miles in 6 races for the Lauren Currie Twilight Foundation

Jamie Flanagan is raising money for The Lauren Currie Twilight Foundation
£1,935
raised of £5,000 target by
Donations cannot currently be made to this page

Ocean Floor Race 2013 Ultra Marathon · 4 February 2013

We fund awareness, research and support to improve outcomes for Vasculitis patients

Story

 

On the 4th of February 2013 I will be undertaking the biggest challenge of my life by running in a 160 mile non stop footrace across the Egyptian White desert over 96 hours.  I will be doing this raising funds for the Lauren Currie Twilight Foundation.

Lauren Currie was only 15 when she died due to Wegeners Granulomatosis on the 23rd of October 2010, but had endured years of misdiagnosis prior to this.  There is no need for this illness to be so regularly misdiagnosed and more awareness of this illness could save so many lives.  Please read Lauren's story here:

http://www.thelaurencurrietwilightfoundation.org/about

As with all WG patients, Lauren's symptoms differed greatly from mine.  It's not a something disease, it's an everything disease.  I myself was misdiagnosed for around 6 months and in that time had lost all of my hearing and the use of the use of the right side of my face.  Luckily, I eventually found a doctor that seen beyond the disguise of the disease and managed to save my life.  His name is Mr Musheer Hussain.  

You can read a bit about me below:

http://www.smj.org.uk/0504/deaf.htm

I thank you all for your support.  It means a lot.

 


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About the charity

The Lauren Currie Twilight Foundation is dedicated to the support of Vasculitis. The charity was set up in memory of Lauren Currie who died of Vasculitis at the age of 15 in October 2010. The charity funds Awareness, Education, Research and Patient Support Services & Groups throughout the UK.

Donation summary

Total
£1,935.00
+ £440.00 Gift Aid
Online
£1,935.00
Offline
£0.00

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