Epilepsy is limiting the life chances of thousands of children and without a change in society, will do so for the rest of their lives. We exist to create a society where children and young people with epilepsy are enabled to thrive and fulfil their potential.  A society in which their voices are respected, and their ambitions realised.

Children and young people with epilepsy have a right to be heard. We listen, and we work with them to make their lives better. We coordinate research that advances diagnostics and treatments, we campaign for children’s rights to access healthcare and education, and we provide innovative tools, information, and practical support for living everyday life. Children and young people are actively involved in developing all our services, ensuring that young people are at the heart of everything we do.

I am very grateful for being given a place to run London for Young Epilepsy. In April 2010 I met a budding Animator Sophie Hannon, and we spoke about practical steps to help her get into the industry, and we stayed in touch. Sadly in July of the same year she died tragically aged only 23 years old in an epilepsy related accident.