James McGonagle

Running for Mia - VEDS awareness - Annabelle's Challenge

Fundraising for Annabelles Challenge
£765
raised
Donations cannot currently be made to this page
Event: Dulux Race to the King 2023, from 17 June 2023 to 18 June 2023
Annabelles Challenge

Verified by JustGiving

RCN 1157074
We raise funds and awareness to support those affected by Vascular EDS.

Story

Update - September 2023

After having to drop out at 39 miles of my Ultra Marathon in the summer due to injury, i feel I still owe some miles

Today I take part in the London Big Half marathon with my best friend Bonnie Jackson

I am again raising money for Annabelle's Challenge Vascular EDS Charity 

Bonnie's daughter Mia has Vascular EDS and the charity works tirelessly for a cure as well as supporting those with the condition and their families.

I know times are tough but a few pounds would go along way if you can. 

I have kept my original fundraising page open while I complete more running events for Mia and Bonnie.

#run4Mia 

#londonbighalf 

#annabelladancechallenge Annabelle's Challenge Vascular EDS Charity

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In a few weeks time I will be competing in the Race to the
King 100km Ultramarathon. I will be completing a course of 100km – (63 Miles)
in one day on 17t June 2023.

I’m doing this mental distance to help raise awareness and
funding for Annabelle's Challenge, the leading charity for Vascular
Ehlers-Danlos syndrome (Vascular EDS) in the UK. 

My lifelong friend Bonnie’s beautiful daughter Mia was diagnosed
in August 2021 and workless tirelessly for the charity to raise awareness.

https://www.annabelleschallenge.org/mias-story

VEDS is a life threatening connective tissue disorder that
effects all tissues, arteries and internal organs making them extremely
fragile. Patients are at risk of sudden arterial or organ rupture.

Having taken up running only 2 years ago I am nervous of the
challenge ahead of me but thinking of Bonnie and Mia will spur me on. Bonnie inspires me every day with complete dedication to her daughter, her condition, and the charity.

With your help I hope to put a smile on both of their faces

Please can you share and sponsor me if you can!

Any help will be greatly appreciated.

Annabelle's Challenge is the leading charity for vascular Ehlers-Danlos syndrome in the UK. At the heart of the charity is Annabelle, a brave little girl from Bury who is the inspiration behind our challenge to raise awareness and support for patients and families affected by vascular EDS. Vascular EDS is a life threatening connective tissue disorder that affects all tissues, arteries and internal organs making them extremely fragile. Patients are at risk of sudden arterial or organ rupture.

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About the charity

Annabelles Challenge

Verified by JustGiving

RCN 1157074
Annabelle's Challenge is raising awareness of Vascular Ehlers-Danlos Syndrome (vascular EDS) to the general public and medical profession to help aid an early diagnosis and prevent misdiagnosis of vascular EDS and to support patients who are affected by the condition.

Donation summary

Total raised
£765.00
+ £161.25 Gift Aid
Online donations
£765.00
Offline donations
£0.00

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