James Burke
Jim's Walk4Joseph2022 page
Fundraising for Joseph's Goal
Story
As a result of getting pissed on a Wigan podcast four years ago I signed up for a charity walk from Wigan to Fleetwood
A year later I walked from Wigan to Leeds with one of the best bunch of sociopaths and functioning alcoholics you could hope to meet.
All to help a young lad called Joseph. I'm doing it again this year and any help will be gratefully received by his family and the other families whose children are affected by NKH
The charity. Joseph's Goal, was established by the parents of Joseph Michael Kendrick an13 years old who has Non-Ketotic Hyperglycinemia, a rare genetic disorder that affects one in 60,000 new-borns.
The condition is so serious that less than 500 people in the world are living with it.
Joseph’s Goal has been set up to raise funds and awareness into NKH.
The condition is so serious that less than 500 people in the world are living with it.
Joseph’s Goal has been set up to raise funds and awareness into NKH.
The question of charity , especially for matters connected to health can be troublesome. A proper tax regime would mean we all pay for the best care and research through Income Tax.
That's not the case and where a condition is as rare as Joe's then research funds are unlikely to ever be a priority.
Joe and his family are incredible people, they know the research will have come too late for Joe but they are determined he will leave a legacy.
Help be part of that legacy