My Uncle, Ron Corriveau,  passed away last Summer due to complications related to a rare neurological disorder called Progressive Supranuclear Palsy. I am running the Amica Newport Half Marathon in his memory and to raise awareness/funding for CurePSP. 

 Ron was one of a kind and is dearly missed by all that knew him. Conversations usually started with him saying your name 3-10 times and ALWAYS ended with his signature reverberating chuckle. Ron's charismatic yet relaxed demeanor made people feel completely comfortable in any setting. His unwavering confidence in everyone he met was unique. Ron believed in others even when they didn't believe in themselves. His adventurous spirit taught us all to "just say yes" and to appreciate the spontaneity of life. Ron's positive attitude, commanding presence (both physical and vocal), captivating storytelling ability, and infectious laugh made every gathering more fun because he was there. I'll always cherish the 32 years of memories shared with Ron and know that he will be with me during this run though Newport. 

 Progressive Supranuclear Palsy is an uncommon brain disorder that causes serious problems with walking, balance and eye movements, and later with swallowing. The disorder results from deterioration of cells in areas of your brain that control body movement, coordination, thinking and other important functions. Symptoms of Progressive Supranuclear Palsy vary but often mimic those of Parkinson's Disease and Dementia. There's no cure for Progressive Supranuclear Palsy, so treatment focuses on managing the signs and symptoms.

 CurePSP is the leading source of information and support for patients and their families, other caregivers, researchers, and healthcare professionals on prime of life neurodegeneration including PSP, CBD, MSA, and related diseases.