Story
Story
On the 11th September 2022 I’ve decided to take part in the Great North Run to help raise money for the Smith Magenis Syndrome Foundation Uk.
My nephew Reign was born with the disability which is challenging every day. I want to raise as much money as possible to help grow the resources needed for this condition.
Smith magenis syndrome is estimated to be found 1 in 25,000 people but only 300 individuals identified in the U.K so far. It is a complex disability and each individual will exhibit different aspects of the characteristics and so each family will develop their own ‘coping’ strategies.
So I have decided to support the foundation in their mission to give everyone with Smith Magenis Syndrome the chance of fulfilling a brighter future.