On July 17 (KdVS Awareness Day) the Koolen-de Vries Syndrome Foundation is kicking off the 2019 Kool Kampaign for Research. The Kool community means so much to me that I've decided to join forces and raise money for a worthy cause! In 2018, $50,000 was raised for research and we are hoping to blow last years goal out of the water.One hundred percent of the donations received will be used to support KdVS research. A number of research projects are either currently underway or may require funding soon, including: drug therapy research; KdVS mouse socialization study; epilepsy and MRI research; speech and language studies; collection and analysis of medical data through the GenIDA organization; scoliosis research; 3D photography for facial recognition. While the research on these projects will continue, WE have the opportunity to ACCELERATE the speed at which these studies can be completed! And your donation will help! Molly and all her kool friends need YOUR HELP so that research can continue in order to find answers to so many questions the parents, doctors and therapists have, in order to learn more about this ultra rare disorder.  Read about KdVS at kdvsfoundation.org.Thank you!