I'm taking part in the Hever Castle Triathlon on the 24th of September and have picked Williams Syndrome to raise money for.

Thank you for visiting the page and donating.

Having a lovely family member who has Williams Sydrome himself was the main reason for me picking the charity, allowing me to see the fanastic work the charity can do with your generous money. Bellow is some information on the condition that might prove interresting.

 

Williams Syndrome is a rare disorder. Like Down's Syndrome it is caused by an abnormality in chromosomes, and shows a wide variation in ability from person to person.

Williams People have a unique pattern of emotional, physical and mental strengths and weaknesses. For parents, teachers, and care workers, learning about this pattern can be akey to understanding a Williams person and inhelping them achieve their full potential.

It is a non-hereditary syndrome which occurs at random and can effect brain development in varying degrees, combined with some physical effects or physical problems. These range from lack of co-ordination, slight muscle weakness, possible heart defects and occasional kidney damage. Hypercalcaemia - a high calcium level - is often discovered in infancy, and normaldevelopment is generally delayed.

The incidence is approximately 1 in 25,000. The Foundation hears of over 75 cases a year - and this figure is rising as publicity spreads. By 2002 over 1300 cases were known in the UK and similar organisations have now sprung up in the USA, New Zealand, Canada, Australia and most countries in Europe.

 

So please dig deep and donate now!!

Regards 

Jack Paine