J HALL

Hadrians Wall challenge

Fundraising for Just4Children
£1,845
raised of £1,000 target
Donations cannot currently be made to this page
Hadrian’s Wall , 21 June 2021
HSP & Me - Team Jones
Campaign by Just4Children (RCN 1164473)
Just4Children are wanting to raise funds for essential specialised equipment, therapy and an assistance dog for Tyler and Eryn.

Story

Tyler and Eryn are 2 children from the Jones family that have been diagnosed with a very rare degenerative neurological disorder called Hereditary Spastic Paraplegia. They both have Type 5a.

Both Tyler and Eryn, along with their sister Ivy, all attend Sherford Vale School.

When Kat and Simon started their fundraising journey they knew of only 3 other people worldwide to have 5a, they have now found another 24 people making the total including their children 27. Tyler and Eryn are still only 2 of the 4 people in the UK to have this disorder.

It is unknown at present how much more this disorder will affect them and because there are so few cases prognosis is also unknown. Team Jones are trying to raise awareness of this disorder at the same time as raising much needed funds for equipment and essentials that will help to make sure the children can live their lives to the best of their ability.

Tyler now has his Assistance Dog, Buddy, Buddy is doing really well and his training is progressing, however with the good comes bad and sadly Tyler has recently been measured up for a wheelchair to enable his little body to cope with extended periods of time out with his family and friends and also for longer distance walks. He is beginning to tire a lot quicker and this is having a detrimental effect on the amount of falls he has.

To be able to fit all of his equipment into a vehicle has meant that the family now need to upsize their vehicle to a van to be able to fit the children, the chairs for Tyler and possibly eventually Eryn, as well as the dog and his handle harnesses etc.

Your generosity is very gratefully received, and as always we shall keep you updated.

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About the campaign

Just4Children are wanting to raise funds for essential specialised equipment, therapy and an assistance dog for Tyler and Eryn.

About the charity

Just4Children

Verified by JustGiving

RCN 1164473
Just4Children is passionate about the relief of sickness & preservation of good physical & mental health of children & young people under 25 years resident in the United Kingdom & Ireland by providing & assisting in the provision of services & grants to enable them to obtain their medical needs.

Donation summary

Total raised
£1,845.00
+ £642.50 Gift Aid
Online donations
£1,845.00
Offline donations
£0.00

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