So back in October last year we went to our 20 weeks scan thinking it was just the gender scan and excited to found out if we were going to have a little boy or girl. We didn't actually know how important this scan actually was. We got told we were having a little girl and that there was a possibility she had Spina Bifida. After this we had the next few days of appointments to confirm that she in fact did have the condition. We next went to Addenbrookes and they also confirmed results and referred us to UCLH to see a specialist. In this appointment with the specialist they told us about a surgery they would perform whilst she is still in the womb. After out weighing the pros and the cons we decided it was going to give her the best chance in life to go ahead with the surgery. 

So at 24 weeks we went back down to London for the operation and spent a week there afterwards so they could keep an eye on us both. We then had to go to weekly appointments to check everything was going okay with her and me. The hospital booked the c-section in for 37weeks but little miss Isla didn't want to wait anymore and she came at 34 weeks (22/1/22) and we got taken down to UCLH for her brith so they had the right care for her as she was fairly early and had the operation 10 weeks beforehand. We had the c-section she was 4lbs 9oz. Other than being 6 weeks early and having a wound on her back was rather healthy. We spent 2 weeks at UCLH and another week at GOSH. We couldn't have asked either hospitals to do anymore for us, the care they both provided was brilliant. The aftercare we have also received from the local hospital and the health visitors has also been brilliant. Isla is doing really well and we wouldn't / couldn't  have got to where we are without Shine's support. We want to spread awareness of Spina Bifida & Hydrocephalus and the research behind it. 

We will be running a year and 3 days after Diagnosis. Thank you for reading our story, any donations is much appreciated.

Lewis, Liv & Isla x

Shine is almost entirely funded by the generosity of the general public. Your donation changes lives. It will enable us to provide vital early intervention, support groups, training events, information, reassurance and so much more."