Story
September is Children's Cardiomyopathy Awareness Month and the time to raise awareness of pediatric cardiomyopathy, a chronic and potentially life-threatening heart disease.
This disease took the life of our beautiful Isabella Rose. At four months of age Isabella was diagnosed with severe hypertrophic cardiomyopathy and heart failure. Even though she was in treatment at DHMC, two months later she passed away shortly before a transfer to Boston's Children Hospital for a heart transplant.
Please join me and Isabella's Roses Team during the entire month of September as we Walk to find a Cure in support of children with cardiomyopathy and their families. All walk proceeds will go towards funding CCF's Family Assistance Program and family support services. Your support means a great deal as this is a cause that is meaningful to me.
The Children's Cardiomyopathy Foundation (CCF) is a national 501(c)(3) organization focused on accelerating the search for causes and cures for pediatric cardiomyopathy. Since 2002, CCF has grown into a global community of families, physicians, and scientists dedicated to improving diagnosis, treatments, and quality of life for children with cardiomyopathy.