Thanks for taking the time to visit Brian’s JustGiving page.

Scleroderma/Systemic sclerosis is the very rare and cruel disease that took Brian away so young. It is an autoimmune disease that has little research with no government funding, there is no cure and there is no definite known cause. It has a wide spectrum of illnesses and no two cases are the same. Unfortunately Brian had the variation of Scleroderma known as DIFFUSE SYSTEMIC SCLEROSIS which is the most fatal and debilitating version of the disease. 

Prior to his symptoms starting in 2020 at the age of just 46, Brian was an extremely fit healthy, fun and life loving man. From the very onset of his symptoms he had an agonising search for a diagnosis which he didn’t get until 1 year later. It came as a heart wrenching shock to be told it was the same disease that had taken our Mum Susan 11 years previous. The specialists told him that he was just extremely unlucky as this is not strictly known as hereditary and only around 150 people in a million are diagnosed with it.  Brian tried to keep upbeat throughout and did as many things as his body would allow, his son Jack was his main focus and this kept his attitude positive for the future. We knew there was no cure for the disease but when we sadly lost Brian on the 4th February 2022 it was much sooner than we could have ever imagined.

Our hearts will forever be broken 

In his memory Brian’s two sisters and father, Brian’s partner and their son ask you to kindly donate to the research of this disease to give future patients and their families more hope at finding a cure. 

Thank you for any kindness and awareness you can give to this cause. 

Leanne 

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