Those who know me in person will know that a personal connection to a very rare genetic form of motor neurone disease drives me not just as a passionate researcher. 

Just like families affected by Spinal Muscular Atrophy take on the challenge of daily tasks, I want to take on this challenge to support The SMA Trust to raise awareness of rare diseases research.

Let’s take this on in unity, please donate what you can to this incredible charity as I attempt to raise a minimum of £600 walking the ’Yorkshire Three Peaks Challenge’.

Follow my journey on Twitter or Instagram @ines_boehm 

Spinal Muscular Atrophy (SMA) is a genetic neuromuscular disease, which means it is inherited and affects nerves responsible for muscle function. Although classified as rare, SMA is the leading genetic cause of infant death, with approximately 95% of the most severely diagnosed cases resulting in death by the age of two. Children with a less severe form, face progressive muscle wasting, loss  of mobility and motor function. 

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