Ian Spriggs
GOSH - RVI
Fundraising for NSPKU
Story
Great Ormond Street Hospital to Newcastle RVI Hospital.
July 21st - july 30th.
350 miles
unsupported
Why do this, well the NSPKU has been with us all of my daughters mollys life and their help has been immeasurable over the years. Over the last 9 years since I've been running I have attempted to raise funds for the charity.
The problem we have in the running world is so many fundraise for so many worthy causes so I have tried to limit my fundraising to two events a year, normally one mid year and one at Christmas. This year though I've been quiet on the fundraising just so people can have a rest from my asking for donations. I decided I will do one almighty event next year to have an all out go to raise as much as possible.
So far I've raised funds on marathons, ultras, novelty events, I've been a Christmas fairy and a turkey. I don't fancy the idea of dressing up again and needed a huge challenge, it has to be difficult for me to achieve.
NSPKU help people with a condition called PKU. It means a person cannot process excess protein and its dangerous to have this excessive protein in your body. From birth you are on an extremely restricted protein free diet.
After reading this, head of to your kitchen and look at food labels, everything you pick up will have protein, think about living without those items.
A person with PKU cannot eat what they want, lots of food is on prescription and protein free. It still means that you can't eat things like, bread, meat, fish, dairy, pasta to name a few. You cannot nip into a shop to pick up a snack, you cannot choose from a restaurant menu, you cannot go into fast food outlets.
NSPKU help everyone with PKU and its a condition and a charity very close to home.
NSPKU also lead the fight in getting a drug called Kuvan made available in the UK. Available in most parts of the world but not here, a PKU person who responds to Kuvan will have their lives improved immensely, I want that for my daughter.
Please follow my adventure and help me help the NSPKU