I’m riding the ‘The 3 Monasteries Ride’ from Puerto de Pollenca in May on a route of 180km and 1750m of climbing ! It will be the longest ride I’ve ever done, but by having a picture of Eben in my mind I’m sure it will drive me on !! 

I’ve worked with Ebens mum Helen for the last 12 years whilst at Zenith, and have seen her and Rory bring their wonderful family into the world…

Ebens muscles are unable to produce Collagen IV protein and alongside his symptoms this led to him being diagnosed with Ullrich Congenital Muscular Dystrophy (UCMD). UCMD is a severe, life-limiting, progressive condition that leads to extreme muscle weakness. It affects the skeletal muscles which impacts areas like walking, if Eben gains the ability to walk he will lose this skill in early adolescence, he is also likely to face respiratory issues, muscle contractures and scoliosis later in life. Treatments and equipment are available to help manage these but sadly, there is currently no cure for UCMD. however there is hope in the form of promising research being done in this area. 80% of funds raised will go towards UCMD research and 20% will be kept in a welfare account for Eben's future needs.

Please make a donation, anything would be hugely appreciated, no matter how big or small…

Thanks