nicolas cerulus

nicolas's International Albinism Awareness day 2021 cycle

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International Albinism Awareness day 2021 cycle, 13 June 2021
Standing Voice

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RCN 1151250
We run a range of programmes to improve lives for people with albinism.

Story

With the support of several  North West rowing clubs I am cycling 216 kilometers on international albinism awareness day 2021 (13th June), a kilometer for every person killed across 29 African countries related to their albinism.

What is Albinism?

Albinism is a genetic condition where people are born with a deficiency of pigmentation in their skin making them at much higher risk of sun burns. People with albinism usually have much farer skin and hair, while often having associated eye problems such as nystagmus, astigmatism, photophobia and general poor eyesight. 

In sub saharan Africa there are still beliefs going around that people with albinisms are so called "ghosts" and that they have special healing powers causing them to be hunted and marginalised by many small communities.

Standing Voice?

Standing Voice is an international non-governmental organisation based in Tanzania, Malawi and the UK. Founded in 2013, Standing Voice promotes and protects the rights of people with albinism and their families across East Africa. The organisation exists as a catalyst to amplify marginalised voices, enabling individuals to shape their own lives and futures, with programmes in Health, Education, Advocacy, Community Development and Trauma Recovery. 

The event?

This year on international albinism awareness day (13th of June Annually), I am aiming to ride 216km, a kilometer for every person killed across 29 African countries related to their albinism. The 216km Will connect many rowing clubs in the Northwest together as a nod to the community i have been a part of since i moved to the uk. The list is:
- Royal Chester RC
- Grosvenor RC
- Runcorn RC
- Liverpool University BC
- Sphinx BC
- Northwich BC
- Manchester University BC
- Agecroft RC
- Liverpool Victoria RC

Each Club has been invited to organise their own small event in conjunction with this day so keep your eyes open from your local club!

King's Chester, Guess the time

King's School Chester RC are organising a competition to guess the total time taken to cover the 216km, closest time will win a custom fleece. To enter simply make a donation and in the donation message place your guess(es), For any donation up to £5 you can have 1 guess (meaning a £1 donation gets you 1 guess, but a £20 donation would get you four). The winner will be announced straight after the end of the cycle!


further details on Standing voice: https://www.standingvoice.org/


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About the charity

Standing Voice

Verified by JustGiving

RCN 1151250
In Tanzania people with albinism are being marginalised, mutilated and murdered. In response to this crisis, Standing Voice’s pioneering projects promote the social inclusion and human rights of people with albinism in the country. We defend the innate human need for inclusion and difference.

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Total raised
£650.73
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£650.73
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£0.00

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