On July 17 (KdVS Awareness Day) the Koolen-de Vries Syndrome Foundation is kicking off the 2019 Kool Kampaign for Research. The Kool community means so much to our kool family we have decided to join forces and raise money for a worthy cause! In 2018, $50,000 was raised for research and we are hoping to blow last years goal out of the water. 100% of the donations received will be used to support KdVS research, which directly impacts Hudson and other families just like ours as well as those yet to be diagnosed! A number of research projects are either currently underway or may require funding soon, including: drug therapy research; KdVS mouse socialization study; epilepsy and MRI research; speech and language studies; collection and analysis of medical data through the GenIDA organization; scoliosis research; 3D photography for facial recognition. While the research on these projects will continue, WE have the opportunity to ACCELERATE the speed at which these studies can be completed! Your donation will help! Read about KdVS at kdvsfoundation.org and stay tuned for additional videos and info from me and Matt via social media and email! Thank you!