Hi Everyone, 

Thanks for taking the time to visit my JustGiving page.

I have set up this JustGiving page to raise money for my amazing Grandson Harris. Harris was born in Glasgow on 4th June 2020 with a diaphragmatic hernia. Following this he was diagnosed with a rare genetic condition called 1P36 deletion syndrome. This means he has epilepsy, global development delay and feeding difficulties to name a few. Harris and our entire family have had an extremely tough 2 and a half years but Harris has overcome so much and got through so many illnesses, operations and hospital stays (totalling over 6 months) - he is our miracle! 

Harris battles everyday with drug resistant epilepsy as well as many other day to day difficulties. Every day is such a worry for us and every day comes with its ups and downs! 

What Harris needs is regular, consistent therapy to help improve his quality of life. Our family don’t know what Harris’s potential is but we will never give up trying to get the best out of him to allow him to live the best, happiest life possible. We are hoping to raise enough money to send him to an intensive physiotherapy centre in Oxford called ‘Footsteps’. This will be 2 hours of therapy per day for 2 weeks this summer. This intensive therapy will hopefully help to build Harris’s overall strength and muscle tone to allow him to sit unaided, play with toys and hopefully one day, walk! This therapy is expensive and is very far away from Harris’s home therefore accommodation for the duration will be required.  In addition to this we would like to be able to continue sending Harris for regular physiotherapy on his return home where he can continue the hard work. The money raised from this could also go towards future home adaptations for Harris.

Now for the scary part! To hopefully raise this money for my Grandson, this spring, I am going to climb a series of Scottish Mountains in the sequence of Harris’s name, along with the 3 highest peaks in the UK to a combined height of circa 8,849 metres. This is the equivalent elevation of Mount Everest - the worlds highest mountain!! Please take a look at the image gallery to see the list of mountains I am going to be taking on. 

Any money raised is held by Tree of Hope which is a charity focused on raising and managing funds for medical treatment, therapy & equipment for sick & disabled children. This money is held on Harris’s behalf in an account which is released as and when needed when a receipt or invoice is produced. 

We as a family would be so grateful for any help you could give to allow us to help our little boy and give him everything he deserves! Thank you so much  

7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover our core operating costs.
 
If we raise insufficient funds, or surplus funds, then the funds will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objects.  If in those circumstances we are unable to use all or part of the funds for the benefit of our child in accordance with Tree of Hope’s charitable objects, then any funds that cannot be used will be transferred to be used for the general charitable purposes of Tree of Hope.
 
If you have any questions at all please do not hesitate to call the family support team on 01892 535525.