Henry’s Hills – Henry & Team take on Snowdon! 

(& Henry’s teachers Mrs Smallman & Mrs Shrewsbury target walking the same distance with 72 Laps of the School! to raise awareness)

The Challenge? 

After his amazing climb last year to the peak of Pen Y Fan (against all odds!), Henry, together with the support of his family and friends, will be attempting to hike to the summit of Snowdon, the highest mountain in Wales!  This will take place over the weekend of Saturday 29th April 2023. 

The challenge involves an 9 mile round trip hiking distance over an elevation gain of 970m (3 x the height of the Eifel Tower!).  The duration of the round trip is expected to take over 8 hours - however long it takes! 

Henry's condition (Duchenne Muscular Dystrophy) makes it very tiring for his muscles to walk for long periods and especially difficult to walk uphill.  To help Henry reach the peak of Snowdon and achieve his goal, our fantastic support team will be at hand to help him when needed.

In addition - on Wednesday 3rd of May, Henry’s lovely teachers Mrs Smallman (who does Henry’s daily stretches at school - they are best friends !) and Mrs Shrewsbury (who is amazing support for Henry and us in her SENDco role) will be walking the same distance (9 miles) in 72 laps of the School! To help raise awareness and fundraise for Henry’s Hills and Duchenne UK.

Who is taking part? 

We have an amazing team of friends and family who have supported us from the outset.  We are joined again by Team Henners.     

Everyone is welcome to join us!  We would be so happy to extend the team!

Please get in contact ASAP if you wish to take part in the challenge at Snowdon, or join in with the local sponsored walk.

Why? 

We want to raise awareness of Duchenne Muscular Dystrophy (DMD) and donations for Duchenne UK to help them find a cure ASAP.

As many of you now know, Henry was diagnosed with DMD when he was just 3 years old. Having had time to try and process this diagnosis, we are now focused on helping Duchenne UK to find a cure, treatment or therapy for our beautiful son and all those who live with the condition. 

What is DMD and who are Duchenne UK?

DMD is a muscle-wasting disease and is the most common form of muscular dystrophy. 

Duchenne UK is a charity that has one clear aim; to end Duchenne Muscular Dystrophy (DMD).  Started by families affected by the disease, Duchenne UK is the leading DMD charity in the UK: connecting the best researchers with industry, the NHS and families to advance and accelerate every stage of drug development to find a cure.  

How can you support? 

We would be extremely grateful to anyone able to support Duchenne UK by raising awareness and making a donation, no matter how small, to help us save our Henry and End Duchenne.  

In addition, if you’d like to get involved in the event in some way, please get in touch. 

Lots of Love, from The Saul Family & Friends xxx