Henry’s Hills – Climbing for a Cure

The Challenge? 

From Friday 29th April to Sunday 1st May 2022 , 'Team Henners' (See name list below) will aim to climb Snowdon, Cader Idris and Pen Y Fan (The Welsh Three Peaks) and cycle over 200km between these mountains for Duchenne UK.

The finale, on Sunday 1st May, will see Henry (aged 8), together with Mum, Dad, little Sister Darcey and a team of 45 no. family and friends, take on the challenge of reaching the highest mountain peak in South Wales, Pen Y Fan!!

Henry's condition (Duchenne Muscular Dystrophy) makes it very tiring for his muscles to walk for long periods and especially difficult to walk uphill.  To help Henry reach the peak of Pen Y Fan and achieve his goal, our fantastic support team will be at hand to help him when needed. 

Who is taking part? 

9 no. Cyclists & Climbers: Ryan Saul, James Grant, James O’Dwyer, David O’Dwyer, Samuel Floyd, Ross Stirling, Aaron Jewell, Doug Dickinson & James Hemmings.

37 no. Climbers: Henry Saul, Jayne Saul, Darcey Saul, Philippa O’Dwyer, Gio O’Dwyer, Eva O’Dwyer, Anneka Sandher, Rachel Bevan, Fiona Floyd, Heston Floyd, Carter Floyd, Nicki Miller, Molly Jewell, Harry Jewell, Carl Postins, Vicky Postins, Charlie Postins, Arlo Postins, Esme Postins, Ian Faithfull, Hannah Andrews, Elena Dickinson, Hugo Dickinson, Niko Dickinson, Lucas Dickinson, Francesca Skillet, Amelia Hemmings, Alex Taylor, Nicole Taylor, Macy Taylor, Lisa Ball, Riley Ball, Debbie Paddock, Baz Paddock, Brendan Churcher & Katie Milford.     

Why? 

We want to raise awareness of Duchenne Muscular Dystrophy (DMD) and donations for Duchenne UK to help them find a cure ASAP.

As many of you now know, Henry was diagnosed with DMD when he was just 3 years old. Having had time to try and process this diagnosis, we are now focused on helping Duchenne UK to find a cure for our beautiful son and all those who live with the disease. 

Time is against us, and we want Henry to achieve as much as he can for as long as he is able; reaching the peak of a mountain will be a massive achievement and an emotional moment.

What is DMD and who are Duchenne UK?

DMD is a devastating muscle-wasting disease and is the most common and severe form of muscular dystrophy. 

Duchenne UK is a charity that has one clear aim; to end Duchenne Muscular Dystrophy (DMD).  Started by families affected by the disease, Duchenne UK is the leading DMD charity in the UK: connecting the best researchers with industry, the NHS and families to advance and accelerate every stage of drug development to find a cure.  

How can you support? 

We would be extremely grateful to anyone able to support Duchenne UK by raising awareness and making a donation, no matter how small, to help us save our Henry and End Duchenne.  

In addition, if you’d like to get involved in the event in some way, please get in touch. 

Lots of Love, from The Saul Family & Friends xxx