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On 4th May I will be flying at over 100 miles per hour down the World's fastest and Europe's longest zipline! This is a self-funded trip, with a fundraising target of £200. Please help me smash this target!
Why I hear you ask? Our friends the Ellison's, live everyday with the prognosis they will out live their son Samson.
Samson was diagnosed in November 2015 with the incurable/terminal condition, Duchenne Muscular Distrophy.
What is Duchenne muscular dystrophy? Duchenne wastes away the skeletal muscles of the body causing eventual paralysis and has a life expectancy of around 25. There are no treatments or cure. Ducenne remains largely unknown, despite affecting 1 in 3,600 male births. It can happen to anyone and around 2,500 young people have it in the UK, right now.
As well as funding research into potential treatments and one day a cure, Action Duchenne also perform a range of activities to benefit the global Duchenne community Please help and support me in raising funds for Action Duchenne, so they can find a cure for all the youngsters with Duchenne, and help give my friends longer with their beloved Samson.
Thank you so much and please share across your networks. One share usually earns £20 in donations!