Helen's page

Helen Pinfold is raising money for NSPKU

Participants: Helen pinfold

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Sony Ericsson Run to the Beat Half Marathon 2010 · 26 September 2010 ·

Exists to help & support people with PKU, their families & carers. It works closely with medical professionals in the UK. It receives no government funding & is dependent on the generosity of its members & the public to fund practical support, raising awareness & research into the condition.

Story

Thanks for taking the time to visit my JustGiving page.

 

My nephew was diagnosed with Phenylketonuria or 'PKU' when he was just 3 weeks old.  In short, this means that he is lacking the gene which breaks down the protein in foods and therefore is unable to eat the foods we eat.  Each week the hospital has to send him special foods with no or very low protein. If he doesn't keep to this strict diet, he can develop lots of problems later on in life, the most severe being brain damage.

By running the half marathon, I wanted to show my support to my brother and my family and hopefully raise some money and awareness for a lesser known charity.

Please visit the following website to find out more.

http://www.pku.com/About-PKU-Com/

Really appreciate your help - I will need all the support and encouragement I can get (believe me!)

Thanks again

Helen

 

Donation summary

Total
£870.00
+ £245.38 Gift Aid
Online
£870.00
Offline
£0.00

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