Thanks for taking the time to visit our JustGiving page.

On the 14th August we will be doing the Big Fun Run again! This year we hope to raise even more money for Tuberous Sclerosis.

As you may know my husband Andy and two of our six children Emma-Jean and Charley-Marie have Tuberous Sclerosis. This is a genetic disorder that causes tumours to grow in all the major organs of the body. Charley- Marie was born with a large tumour inside her heart so big that the doctors told us at 28weeks pregnant that she would die. She celebrated her 1st birthday in Jan!! She still has the large tumour but dipite this is doing well.

Emma Jean who is 3 has two small tumours inside her heart and one behind her eye. She also is doing well. We dont know what the future holds for us so we are just enjoying evreryday with our special children.

Other people who are affected by TS are not as lucky and have severe disabilities.

Our aim is to raise as much money as possible to help all those who live with this life threatenning condition.

We were told our baby would not survive the end of pregnancy but she has just celebrated her first birthday!!!!!!!!!

You can find more information on the TS website and facebook or ask me!!

Please give as much as you can and hopfully together we can make a difference thank you :-)

Heather, Andy, children, friends and family xx

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