Story
Thanks for taking the time to visit my JustGiving page.
My sister suffers very badly from this terrible chronic disease.
IT IS A VERY UNDERFUNDED RESEARCH AREA!
LACK OF FUNDS = NO PROGRESS TO CURE
LACK OF FUNDS = NO MONEY TO HELP AND SUPPORT THOSE IN NEED
And I want to do what I can with the painless time that I have to make a difference by raising awareness and money for ENDOMETRIOSIS UK
MONEY = MORE RESEARCH = HOPE FOR TREATMENT + CURE???
(Cure is a long way away but with more research, it could be closer)
So I have decided to run a marathon (because I cannot make the official ENDO UK event - Brighton Marathon)
What is Endometriosis? -
- A chronic and debilitating disease
- Where the cells similar to the lining of the uterus (womb lining) grows elsewhere in the body (can literally be anywhere, lungs, heart, bowls)
- These cells bleed like a period (build up and break down) like the uterus does
- Severe PAIN
Why is this a problem?
- These cells that bleed - that blood has nowhere else to go - severe pain, inflammation and scare tissue forms
- It takes average 8 years to get diagnosed
- There is no cure and treatments don't really work for many (some respond better than others)
- 1/10 women have it
Endometriosis can have a significant impact on a person's life in a number of ways, including:
- Chronic pain
- Fatigue/lack of energy
- Depression/isolation
- Problems with a couple’s sex life/relationships
- An inability to conceive
- Difficulty in fulfilling work and social commitments
It’s important to remember that:
- Endometriosis is not an infection
- Endometriosis is not contagious
- Endometriosis is not cancer
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