Jack is 13 years old and suffered from Marfan syndrome.he has a dialated aorta,witch he get checked every few months.he has to have beta blockers every day.he has to wear splints on his legs.he had his lenses removed when he was four years old so he wears very strong glasses.we don't know anyone else with Marfan syndrome.    He never complained of his illness.  Thanks for taking the time to visit my JustGiving page.

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