Hayley Henry

Hayley's page

Fundraising for Retina UK
£1,775
raised of £500 target
Donations cannot currently be made to this page
Event: Virgin Sport Oxford Half Marathon 2017, on 8 October 2017
Retina UK

Verified by JustGiving

RCN 1153851
We fund sight loss research & support to ensure people can lead a fulfilling life

Story

Hello everyone! Ok... my motivation for running 13.1 miles: My lovely mum was diagnosed with Retina Pigmentosa aged 30. It is an incurable disease that affects vision and can lead to total blindness. Some days are better than others and things like sunlight can really affect my mums vision. With a lack of peripheral vision and total blindness at night, mum can struggle from day to day. But it's her resilience to carry on that astounds me. Daily tasks like going shopping can be a real struggle for my mum, but she never gives up. Not even when she's tutted at for walking slow, or grunted at for bumping/walking into someone. Because mum doesn't "look" blind, people assume there's nothing wrong. It is her resilience that has inspired me to run my first half marathon. I really don't actually enjoy running and am finding training tough.... but this challenge only represents half the daily challenges my mum takes on every single day. If she can keep going, so can I!! If anything, I'm hoping the guilt that people have donated on my behalf will get me round... so please dig deep! I need all the help I can get! Hayley xx

P.s This article really sums up life with RP: https://www.google.co.uk/amp/s/amp.theguardian.com/lifeandstyle/2016/nov/14/the-way-i-see-it-living-with-partial-blindness-rp

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Share this story

Help Hayley Henry

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the charity

Retina UK

Verified by JustGiving

RCN 1153851
Retina UK is the only UK charity dedicated solely to working for people affected by inherited sight loss. We fund medical research to accelerate the search for treatments for the future, and provide information and support to help people lead better lives today.

Donation summary

Total raised
£1,775.00
+ £336.25 Gift Aid
Online donations
£1,775.00
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.