Thanks for taking the time to visit our JustGiving page.

Our beautiful baby boy was born 10 weeks early and spent a while in neonatal in Gloucester, Worcester and Redditch. After 7 weeks we were finally able to bring Harry home and we spent 5 magical, blissfully happy weeks as a family. At about 12 weeks old, Harry started to have breathing problems. He spent 3 weeks in the Alexandra Hospital in Redditch before he was transferred to Birmingham Children's hospital. Initially they thought he was just having problems as his lungs were not developed properly due to him being 10 weeks premature. 

After 2 weeks in the Children's Hospital, Harry stopped breathing. This was terribly distressing for us but the amazing doctors & nurses did a fantastic job in saving him & he was then transferred to the PICU department. He was ventilated and had numerous tests while there. After 5 weeks in PICU, we had the devastating news that Harry had Spinal Muscular Atrophy (SMA) Type 1, a genetic neuromuscular condition with no cure. We were told he only had days left to live. Just 3 days later, a couple of hours after his christening, he peacefully passed away in our arms.

We appreciate anything you can donate however much or little you can spare. Losing Harry has been the worst experience of our lives but hopefully by raising money in his name, we can help other families in a similar situation.  We need to help find a cure for this devastating condition.

Thank you for reading about Harry & for donating, it means a lot to us. 

Penny & Jason