Story
Dear Friends and Family,
Join me (again!) in raising research funds for congenital hyperinsulinism (HI)! While the bike ride is virtual this year due to COVID-19, the need for new treatments, improved diagnostic testing, and a cure is more urgent than ever.
HI is a life-threatening disorder that causes dangerously low blood sugar levels. Prolonged or severe low blood sugar can cause seizures, brain damage, and even death.
As many of you know, HI is close to my heart. My brother Ben was diagnosed at one week old. During his first week of life, Ben had prolonged, extremely low blood sugar, which has resulted in lifelong challenges with vision, motor coordination, and learning. We are SO lucky that Ben has had access to incredible medical care since his diagnosis and has been able to live a happy, fulfilling life. Many families are not as fortunate -- in addition to funding research, Congenital Hyperinsulinism International (CHI) works every day to connect people with HI from all over the world with access to quality care and lifesaving medications.
Since Ben's diagnosis, thanks to cutting-edge research, we've seen improved diagnostic testing, new treatments, and even a cure for one type of HI. However, there's so much work to be done.
New treatments are needed! Your fundraising dollars will be used for innovative, pre-clinical or clinical studies designed to improve the diagnosis, therapy, or quality of life for those affected by congenital hyperinsulinism. The first $20,000 we raise is matched by the University of Pennsylvania, our partner in funding research. That means your donation will be worth double the amount.
Thanks to all of you, CHI has raised over $450,000 for congenital hyperinsulinism research since 2013. Let's keep it going!!!
Much love,
Hannah