On 29th and 30th May Hannah, Roger and Sarah will run our virtual
Edinburgh Marathon Festival events in loving memory of our wonderful son
 and nephew Ben.   Sarah will do her 10k on a posh farm in Essex before
attending a wedding, and Roger's half marathon will be round the grimy
streets of Sheffield, cajoling Hannah on the second half of her first
(and probably only!) marathon.

Whilst Ben lived his life to the
full (20 countries, 50 football stadia and lots of nice restaurants) his
 life was severely compromised by the physical debilitations of Duchenne
 Muscular Dystrophy.   Every year in the UK around 100 boys are
diagnosed with DMD.   Most lose their ability to walk between the ages
of 10 and 14 years.    They will eventually become paralysed and many
lose their lives by their late twenties.   Action Duchenne strive to
develop effective treatments for all by funding research, educating
clinicians and researchers, supporting clinical trials and campaigning
for access.

No family should have to watch a beloved child
deteriorate in front of their eyes so please support our heroic running
efforts by giving as generously as you are able to.