Natasha Davies

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Fundraising for Ehlers-Danlos Society
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EDS/HSD Awareness IG Hop, 24 May 2020
Join The Ehlers-Danlos Society in celebrating May as Ehlers-Danlos Syndrome/Hypermobility Spectrum Disorder Awareness Month and find your personal, team, or community challenge. We are challenging you to help spread EDS/HSD awareness by completing a

Story

Firstly, I would like to thank you for supporting

this cause with me. It is something very close to my heart.
I have suffered from complications/symptoms
associated with HSD/EDS3 for as long as I can remember.


HSD, or Hypermobility Spectrum Disorder, can range from just being abit 'double-jointed' and having some fun 'party tricks' right through to having unstable joints which can easily dislocate; fully or partially.


EDS, or Ehler's Danlos Syndrome, is a range of illnesses which are caused by a genetic difference that affects the connective tissues throughout your body. There are many sub-types of EDS which can affect different areas
of your body.


I have EDS type3 which is the Hypermobility subtype.


I spent years with a wide range of health problems, from Gastro to Gynae, Reumatology to Neuro. I saw so many Dr's and surgeons, none of them considered that all of these seemingly unrelated issues could
be linked.

One day during the EDS Awareness campaign
2yrs ago I heard a Dr. on the radio talking about this illness. He listed some of the symptoms and encouraged people to mention EDS/ HSD to your Dr ifyou thought it could fit.


I will always remember the tagline he gave:
"If you can't connect the issues, think connective tissues."

That is why I am doing this: Maybe, just maybe this will get to someone else who needs it.

Thank you again for any support you can give it means more to me than I could possibly express.

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About the campaign

Join The Ehlers-Danlos Society in celebrating May as Ehlers-Danlos Syndrome/Hypermobility Spectrum Disorder Awareness Month and find your personal, team, or community challenge. We are challenging you to help spread EDS/HSD awareness by completing a

About the charity

Ehlers-Danlos Society

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The Ehlers-Danlos Society is dedicated to advancing and accelerating research and education in EDS and HSD. We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.

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