Story
Firstly, I would like to thank you for supporting
this cause with me. It is something very close to my heart.
I have suffered from complications/symptoms
associated with HSD/EDS3 for as long as I can remember.
HSD, or Hypermobility Spectrum Disorder, can range from just being abit 'double-jointed' and having some fun 'party tricks' right through to having unstable joints which can easily dislocate; fully or partially.
EDS, or Ehler's Danlos Syndrome, is a range of illnesses which are caused by a genetic difference that affects the connective tissues throughout your body. There are many sub-types of EDS which can affect different areas
of your body.
I have EDS type3 which is the Hypermobility subtype.
I spent years with a wide range of health problems, from Gastro to Gynae, Reumatology to Neuro. I saw so many Dr's and surgeons, none of them considered that all of these seemingly unrelated issues could
be linked.
One day during the EDS Awareness campaign
2yrs ago I heard a Dr. on the radio talking about this illness. He listed some of the symptoms and encouraged people to mention EDS/ HSD to your Dr ifyou thought it could fit.
I will always remember the tagline he gave:
"If you can't connect the issues, think connective tissues."
That is why I am doing this: Maybe, just maybe this will get to someone else who needs it.
Thank you again for any support you can give it means more to me than I could possibly express.