Hana Peconkova

Hana is running the London marathon for MPS Society

Fundraising for The Society For Mucopolysaccharide Diseases (The MPS Society)
£3,358
raised of £2,300 target
Donations cannot currently be made to this page
Event: London Marathon 2024, on 21 April 2024
In memory of Samantha Downey
The MPS Society's 2024 team of runners will be raising money to help us support our members who are affected by MPS, Fabry and related lysosomal diseases by taking part in the TCS London Marathon on 21st April 2024.

Story

Thanks for taking time to visit my Just giving page.

The reason why I'm running for MPS Society charity is that my best friend's daughter Sam sadly passed away last year in very young age. Sam was supported by MPS Society when she was diagnosed with the rare genetic illness MPS1. Sam lit up the room when she walked in. Despite all her problems she was always a happy bubbly woman. Never had anything negative to complain and took it in her stride. Her son Leo was the light of her life and her whole world. She was loved by so so many and has left a big hole in everyone's lives.

That's why  raising funds for MPS Society will hopefully one day find hope for people like them.

I have never run the full marathon,just the half marathon,10km,5km. So this is something new for me. But It's nothing compared to what Sam's family are going through...

So please,if you can donate I would truly appreciate it. It will also spur me on to get round London on what is simply going to be the biggest challenge I have done in my life!

If you see me around please cheer me on or if you fancy coming out with me for a run , please just let me know.

Thank you all so much for your support s.

Lots of love

Hana xxx

🏃 ❤️ is


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About the campaign

The MPS Society's 2024 team of runners will be raising money to help us support our members who are affected by MPS, Fabry and related lysosomal diseases by taking part in the TCS London Marathon on 21st April 2024.

About the charity

The Society For Mucopolysaccharide Diseases (The MPS Society)

Verified by JustGiving

RCN 1143472 and Scotland SC041012
The MPS Society provides specialist support to children, adults and families in the UK who are affected by MPS, Fabry and related lysosomal storage diseases and we fund research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions with no cure.

Donation summary

Total raised
£3,357.51
+ £601.38 Gift Aid
Online donations
£3,357.51
Offline donations
£0.00

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