KD-UK was set up to find a cure for this rare disease and help raise much needed awareness.  They are run by volunteers who take no salaries, outgoing are keep to a minimum, in fact their biggest outgoing is to Just Giving. There is no government funding for research as KD is a rare disease, so fund-raising is vital to help them achieve their mission.

Kennedys Disease (SBMA) is an inherited neuromuscular disorder which is passed down through females but only affects men.  It usually appears when people reach 30 to 50 years of age.   What starts with small trips and falls, can eventually lead to wheel chair confinement and full-time care.

KD-UK needs £300,000 a year to keep it's laboratory running.