HADDS Foundation
Open Giving for the EBF3 HADDS Foundation
Fundraising for EBF3 HADDS Foundation
Story
Our Guiding Principles
The EBF3 HADDS Foundation was created to promote awareness, research, and support for individuals and their families living with EBF3 HADD Syndrome, a genetic syndrome discovered in 2016. The
Foundation is a registered 501(c)(3) and based in Houston, TX. EIN: 83-2757964
Mission:
Enhance the lives of people with HADDS through research, education, support and advocacy.
Vision:
Raise educational awareness and funding for research so that every person with HADDS:
- Has a supportive community
- Is able to reach their full potential
- Has access to the most current educational/therapy materials
- Has access to the most current research
- Ethical & Transparent: It is the Foundation’s priority to be ethically and financially responsible when advancing our mission in the areas of research, education, support and advocacy.
- Committed: We are nothing as an organization if we are not committing our energy, talents and resources consistently towards research and education. Commitment drives progress!
- Inclusive & Collaborative: Be ambassadors for inclusion, welcoming and facilitating an environment of hope, belonging and community for all impacted by HADDS globally